Publications

Journal Articles

Ferguson, R., Crist, E., and Moffatt, K. (2017). A framework for negotiating ethics in sensitive settings: Hospice as a case study. Interacting with Computers, Special Issues on Co-Constructing Meaning: Ethics Matter(s) in Design Research, 29(1):10–26. doi: 10.1093/iwc/iww018

Book Chapters

Ferguson, R. (2017). Negotiating Consent, Compensation, and Privacy in Internet Research: PatientsLikeMe.com as a Case Study. In K. Kinder-Kurlanda, K. & M. Zimmer (Eds.), Internet Research Ethics for the Social Age: New Challenges, Cases, and Contexts. Switzerland: Peter Lang.

Refereed Papers in Archival Conference Proceedings

Ferguson, R., Massimi, M. Crist, E., and Moffatt, K. (2014). Craving, Creating, and Constructing Comfort: Insights and Opportunities for Technology in Hospice. Proceedings of the 17th ACM Conference on Computer Supported Cooperative Work & Social Computing (CSCW 2014), 1479–1490.
[ACM CSCW Best paper award]

Workshop Proceedings

Ferguson, R. (2016). Ethics and the Long-Term Management of Personal Information. Position paper presented at Personal Information Management Workshop 2016 at ACM Conference on Human Factors in Computing Systems (CHI 2016), May 7-8, San Jose, California.

Ferguson, R. (2014). Getting Personal: Bereavement Interviewing and Intervening. Position paper presented at Workshop, Co-creating & Identity-Making in CSCW: Revisiting Ethics in Design Research at the ACM Conference on Computer Supported Cooperative Work & Social Computing (CSCW 2014), Feb 16, 2014, Baltimore, Maryland.

Ferguson, R. (2013). An Anthropological Approach to Personal Information Management, Position paper presented at Personal Information Management Workshop 2013: Beyond the Cloud: Rethinking Information Boundaries. Annual Meeting of the Association of Information Science and Technology (ASIS&T), Nov 1, Montréal, Québec.

Ferguson, R. (2013). Using the Information Senses Framework to Think About Patient-Centered Biomedical Recordkeeping. Position paper presented at Beyond Formality: Informal Communication In Health Practices Workshop at the ACM Conference on Computer Supported Cooperative Work & Social Computing (CSCW 2013), Feb 24, San Antonio, Texas.

Ferguson, R., Moffatt, K., and Massimi, M. (2013). Formal and informal messages: Early reflections on how context and content influence ICT use at the end-of-life. Position paper presented at Beyond Formality: Informal Communication in Health Practices Workshop at the ACM Conference on Computer Supported Cooperative Work & Social Computing (CSCW 2013) Feb 24, San Antonio, Texas.

Conference Extended Abstracts, Posters, and Demos

Ferguson, R., Massimi, M., Crist, E., and Moffatt, K. (2013). Supporting communication at the end-of-life: Comparing ICT use by families in hospice settings. Poster presentation at the Annual General Meeting of the Graphics, Animation and New media (GRAND) Network of Centers of Excellence, (GRAND 2013), Toronto, Ontario.

Ferguson, R. (2013). The Information Senses of Whole Person Care: A PatientsLIkeMe.com Case Study. Poster presentation at First World Congress on Whole Person Care, Montréal, Québec.

Ferguson, R. (2013). Exploring Emergent Research Ethics and Attitudes Towards Privacy on PatientsLikeMe.com. Poster Presentation at Social Media and Society 2013, Halifax, Nova Scotia.

Ferguson, R. (2012). What Does Your Username and Picture Mean/Come From?, Serendipitous Identity Discovery when Data-Mining Personal Health Information, Poster Presentation at SCORE: Serendipity, Chance and Opportunity in Information Discovery Workshop. Montréal, Québec.

Theses

Ferguson, R. D. (Forthcoming). Exploring Personal Financial Information Management Among Young Adults. (Unpublished doctoral dissertation). McGill University, Montréal, Quebec.

Ferguson, R. D. (2011). Crowdsourcing health information: An ethnographic exploration of public and private health information on patientslikeme.com. (Unpublished master’s thesis). York University, Toronto, Ontario.

Presentations and Talks

Dorey, J., & Ferguson, R. (2017). Research ethics and protecting your research participants Workshop at Archival Education Research Institute (AERI 2017). Toronto, Ontario.

Ferguson, R. (2017). Exploring the personal financial information management of young adults. Personal Digital Archiving 2017 (Palo Alto, California).

Ferguson, R. (2015). In Interfaces We Trust? Exploring Preservation of Personal Financial Information Among Young Adults. Archival Education Research Institute (AERI 2015). College Park, Maryland.

Ferguson R. (2013). From expectation to reality: an exploration of patients’ perspectives on reciprocity and fair use of data within Patientslikeme.com. 6th Annual Web2.U Symposium. Montréal, Québec.

Ferguson, R. (2009). Campus Friction: An Ethnographic Exploration of Protest in Vari Hall, Playing the Field Conference. Toronto, Ontario.